Monday, October 12, 2009

Dairy Free Market

It's not often we find places we can buy foods for our dairy free child that have a large selection but this may be our answer.

Thursday, September 24, 2009

Ice Cream

We found a non-soy based ice cream that is GREAT!!!!

Creamy Broccoli Soup!!!!

Monday, September 21, 2009

EE Clinic Appt

Well, this was actually one of the better appointments we've had. I feel like we've learned more in the last 5 months than we have in the last 3 years of this disease. June's scope was almost completely clear. There were 2, 3 and 5 eosinophils per hpf. It was the best scope yet after removing milk in April. The appointment that should have followed days after the scope did not happen until today. The doctors were happy with everything. Her cortisol levels were normal so we can continue the Pulmicort Slurry.

Friday, September 4, 2009


Here's another simple way you can help....

Go vote for APFED in Intel's Vote for a Cause on Facebook.

You must have a Facebook account. Just select APFED and click. It's that simple and you can go back and vote every day.

Thursday, September 3, 2009

We have Pizza!!!!

Ok, so I'm not sure who was more excited me or Kaylin! We tried out Pizza Fusion tonight in Temecula and it was awesome. Thanks to their vegan pizza, she was able to have real pizza with dairy free soy cheese. She was totally excited to have real pizza. The restaurant was way more "crunchy granola" than we're used to but it was good. She has tried dairy free cheese before and simply put, it was nasty. It was cool to have pizza that not only tasted like pizza, it was good pizza. They also have GF stuff on the menu too!

Monday, August 31, 2009

And once more today

Kaylin called again today. She wanted me to bring Tums to school but we both know that only offers immediate relief of some acid but won't really do anything to stop her from spitting up. I had to explain to the school that this is something she's going to have to live with.

School called...again

Kaylin was in the office again today complaining of "spitting up" which is basically reflux and sometimes a little food along with it.

After thinking about what she ate yesterday, it looks like we screwed up last night and the Arby's sandwich she had last night for dinner had milk in the bun. :( Lesson learned.....again, check and recheck everything!

She also snuck a few bites of cheese bread this weekend. Hmmmmm. We're learning just how little effects her.

Friday, August 28, 2009

More Wheezing

Kaylin's school called yesterday and she wanted to come home since she was wheezing so bad. We started the nebulizer with Albuterol and scheduled an appt. for this morning with the allergist. The allergist agreed with us thinking the wheezing was triggered by allergies and started her on Nasicort for the allergies and we can continue doing the nebulizer as she needs it. If the asthma symptoms continue, the next step normally would be a preventative cortico-steroid like Flovent. The problem is, she's already on a medication like this in swallowed form for her EE. The last thing we want to do is add more. Hopefully it's just seasonal allergies and getting that under control will solve the problem. The current fires going on in So Cal and the super hot dry weather aren't helping!

Tuesday, August 25, 2009

Article: EE in Today's Dietician

So many articles on EE just plain other way to put it. Most are lacking information or stating the opinions of some Dr. in Po-Dunk-Nowheresville that has a total of 1 EE patient. This one is awesome and covers the basics. It's a few years old but worth reading....


has been interesting.

Kaylin has had wheezing off and on which we can't figure out.

Her Aunt decided to feed her Whoppers (AKA Malted Milk Balls covered in Chocolate @@) without telling us. After 4 days of reflux, spitting up food, actually throwing up, a little wheezing and waking up night after night, we were stumped. A few days later, we heard through the grapevine she was given Whoppers, obviously containing milk. I can't even explain the frustration with that situation.

She went to a party with family in San Diego this last weekend which has resulted in allergy symptoms and bad wheezing the last four days and nights. She spent the entire first night coughing. This wheezing thing is new.

Last August was rough for her too with reflux symptoms but she also started school and got a new baby brother. We're still suspicious of enivironmental allergies though. The trips to San Diego to see family with inside dogs seem to be followed by a few days of stuffiness and reflux.

Thursday, August 20, 2009

Scope Follow Up...Finally!

We've been struggling all summer to get an appt. to follow up for Kaylin's endoscopy done in June. We were told over the phone the scope results but did not get an official plan from the doctors. They called this week to schedule an appt. finally AND let us know that the EE Clinic is being turned over to the foundation rather than being part of the hospital. This means that the almost $200 "hospital fee" will no longer be charged!!!!! We'll be seen Sept. 21st!

Article: Food allergies increasing

Food allergies increasing

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Article: Food Allergy & Anaphylaxis Network Commits $1.1 Million for Food Allergy Research

Food Allergy

This includes research for Eosinophilic Esophagitis.

Article: Faster, Easier Test Diagnoses Chronic Allergic Condition - insciences

Faster, Easier Test Diagnoses Chronic Allergic Condition - insciences

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Article: Benefits of Milk Immunotherapy Persist

Benefits of Milk Immunotherapy Persist

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Thursday, June 18, 2009

Clear Scope!

We stopped milk in April and waited to scope. June's scope is almost completely clear. This is the best scope Kaylin has had since diagnosis!