Monday, July 19, 2010

An Update

Updates and posts have been few and far between and not at all what I was hoping. I'm going to do an all inclusive post here and then try to go back and post some of the new articles and news that have come out recently. I know I have a bunch saved.

Kaylin had a really tough time this year starting in Feb. and we removed a handful of foods which seemed to initially help but she was feeling sick and throwing up more and more. Nothing had changed in her diet and her medications were the same. I finally pushed for her endoscopy to be done a few months early. Great news is, it's her best scope ever! Bad news was, she was still throwing up. At her follow up appt. they added Miralax into the mix and it has worked wonders. At first I thought the Dr. was crazy and that it was something more but she is now at the healthiest she's ever been!

She's continuing with the Pulmicort Slurry and Nexium. We will also continue with her diet. She is off ALL dairy and limited soy, egg, pork and rice.

Thursday, July 15, 2010

Sunday, June 27, 2010

ARTICLE: EoE linked to Allergy Gene

http://techcombo.com/2010/06/27/allergy-disorder-eoe-linked-to-allergy-gene-123/

Tuesday, June 22, 2010

We have cake!

It's the little things that make dealing with food removal so difficult. The kids don't always care about the things I think they would but birthday cake is a biggie.

We are only dealing with nuts and milk removal out of the top 8 foods but this cake is also free of eggs, and possibly soy - I'm not positive.

MOST but not all Duncan Hines boxed cake mixes are free of nuts and also not manufactured with tree nuts and most are also free of dairy. We use Pillsbury frosting which I know has soy in it but once again nut and dairy free.

We've heard about the "diet" cake or the "Weight Watchers" cake for a long time but finally tried it. You basically mix a can of soda and a cake mix, and bake it. It's light and fluffy even though it does not rise the same and it's awesome frosted or with berries on top like pound cake or angel food cake.

You have to stick to the clear sodas with a white cake mix or strawberry and I've heard Coke works well with chocolate cake but we haven't tried that. Today we used Hansen's Diet Pomegranate and it came out awesome!

My kids and I don't want allergy free recipes we can tolerate, we want food anyone would eat and this is one of them.

Sunday, April 4, 2010

Rice?

We went to the EE clinic this last week and Kaylin explained that every time she eats Rice Krispies, she spits up. I had only heard this once and just a few days before her appt. She has been eating them on a fairly regular basis for months without a word. ARGH! I know it's difficult for her to relay what she's going through but it's so frustrating. The Dr. asked if she had problems when eating rice and she replied no. Two days later, Grandma gave her chocolate rice milk and she loved it. She hated the regular rice milk when we gave it to her when she removed all dairy and we never tried again. She was in pain that night worse than I'd seen her in months. It continued into the next day and she had no appetite at all for two days.

Tuesday, January 26, 2010

Another New Article On EE

Read this article today. It's a great one to spread awareness. I find it interesting that the doctor who was interviewed came from the NIH since there are no funds going to Eosinophilic diseases from the NIH but hopefully that's a good sign. This article comes from the Allergy Mom's site which is one of my favorite.

http://www.allergymoms.com/modules/wordpress/index.php?p=880

Monday, January 25, 2010

The good with the bad

The good news is, Kaylin is doing great and we're really getting a handle on what causes her to react. The bad news is, we think that list now includes eggs along with the soy and dairy. She is not able to have dairy at all but straight soy milk or eggs seems to cause a reaction as well. We've been suspicious of the eggs for a long time but it's not something she eats all the time. The last time she had eggs for breakfast, she was complaining she was spitting up within an hour. We decided we'd watch it but not tell her. Tonight we had hard boiled eggs and again, within an hour she let me know she was spitting up again. I think we'll lay off the straight eggs for now and see how she does. It's not a constant problem like the dairy was so we'll just leave it at that as long as her symptoms don't return.

Sunday, January 3, 2010

Christmas

The holidays are always difficult trying to figure out what is safe to feed our girls. With Kaylin's milk allergy and Keira's nut allergy, eating at other people's houses and keeping the kids out of holiday treats that are ever present can be so overwhelming.

On our way places we've been stopping by McDonalds more than should ever be allowed, lol. It's not the healthiest but a Hamburger Happy Meal minus the fries is milk free for Kaylin.

I also discovered that Baker's Chocolate is dairy free and made Kaylin her own "truffles" for Christmas.

Kaylin did sneak some white chocolate in the middle of our holiday baking. She was spitting up again and complaining her stomach hurt. I didn't realize what had happened until I found the evidence and she fessed up. It was very clear to her what the cause and effect was and she agreed it wasn't worth it.